Lessons learnt from the recent recommendations for the non-pharmacological management of systemic sclerosis.
Authors
Tânia Santiago; Ruben Fernandes; Ricardo Ferreira; Ioannis Parodis; Carina Bostrom;
Keywords
In inflammatory rheumatic diseases, including, systemic sclerosis (SSc) there is growing evidence that treatment strategies should not only target disease control in terms of clinical features and laboratory tests but consider distinct interventions to mitigate all domains of perceived disease impact. The results of a multicentric work based on data from the Rheumatic Diseases Portuguese Registry (Reuma.pt)/Scleroderma indicated that the optimization of outcomes for patients with SSc would in all probability require assessment of the needs of individual patients and consider adjunctive interventions in clinical practice to mitigate all significantly affected domains of disease impact.
Recently, in June 2023, a task force under the auspices of EULAR, comprising rheumatologists, health professionals and patient advocates published four overarching principles and twelve recommendations for the non-pharmacological management of people living with SSc and systemic lupus erythematosus (SLE).
Tânia Santiago
Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra/ Faculty of Medicine, University of Coimbra, Coimbra, Portugal
Ruben Fernandes
Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Ricardo Ferreira
Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon (ESEL), Lisbon, Portugal
Ioannis Parodis
Division of Rheumatology, Department of Medicine Solna, Karolinska Institutet, Stockholm/ Department of Gastroenterology, Dermatology and Rheumatology, Karolinska University Hospital/ Department of Rheumatology, Faculty of Medicine and Health, Örebro UV
Carina Bostrom
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.
Rheumatology, Centro Hospitalar e Universitário de Coimbra, Coimbra/ Faculty of Medicine, University of Coimbra, Coimbra, Portugal
Ruben Fernandes
Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, United Kingdom
Ricardo Ferreira
Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Nursing School of Lisbon (ESEL), Lisbon, Portugal
Ioannis Parodis
Division of Rheumatology, Department of Medicine Solna, Karolinska Institutet, Stockholm/ Department of Gastroenterology, Dermatology and Rheumatology, Karolinska University Hospital/ Department of Rheumatology, Faculty of Medicine and Health, Örebro UV
Carina Bostrom
Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden.